We don't often have "easy" days. You know, the days where you wake up feeling refreshed; eat a great breakfast and break into the day slowly. The day continues on with few bends and certainly no fractures. It's quiet and peaceful, the day tarries on just as planned. And you snuggle into bed peacefully at the end of the day.
Every night I have a prayer that has been etched into my heart— Wake me if they need me. This morning I awoke to Cookiepants gagging. She's had a rough couple of days, which is a great understatement. Two nights ago, she entering into the worst gagging/choking jag I'd ever seen. She wasn't choking on anything other than what was likely reflux. This has been going on since birth. We've been witness and active participants to this for over 3 years. In truth, we've never gotten used to it, not in full.
If ever there were a time I wished I could impress my will upon a situation, it would be now. This child has seen every specialist under the sun. She's even had a surgery that was supposed to resolve 80% of the issues surrounding her reflux. We are 4 months beyond from the surgery and some of the issues have gone away but some of the most life threatening ones are still lurking. This child has been prayed over and for by the hundreds. I believe that simple fact is one of the prevailing reasons she's still here with us today.
What is my will for Cookiepants?
My will is that she would be maximized to the greatest degree with which she can go. My prayer for her is being whole and living a life of fullness. My prayer is that life wouldn't be so bloody painful and such a great struggle for her. That all her tears would be replaced with laughter. Her fear would be replaced with certainty. That she would be able to do and accomplish the same things that we do with ease. I can't possibly explain the ache in my heart for her. I can't paint a picture, exactly of what I see.
I have however accepted where we are, I just can't allow the hope of something vastly different die. What do I know?
"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13-14
"And God raised us up with Christ and seated us with Him in the heavenly realms in Christ Jesus." Ephesians 2:6
"People were bringing little children to Jesus for him to place his hands on them, but the disciples rebuked them. When Jesus saw this, he was indignant. He said to them, 'Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these. Truly I tell you, anyone who will not receive the kingdom of God like a little child will never enter it.' And he took the child in his arms, placed his hands on them and blessed them," Mark 10:13-16
Cookiepants was knit together by my heavenly Father in my womb. She was wonderfully made. She is seated in the heavenly realms with Christ Jesus- she is already made perfect there! She is dearly loved and blessed by Jesus. Jesus loved children more than we could ever fathom, more than we as imperfect parents, love our children.
"'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you a hope and a future.'" Jeremiah 29:11
God has a plan for Cookiepants' life! She has a grand purpose here. She is here to take hold of hope and a future. We do not know what those plans are. We just know that we are an integral part of her purpose, she was gifted to us by our heavenly Father. It has been made clear to us that He saw something in us and wanted to bring something to life in us- in order that we would carry out His plan. Amidst the trials, I feel honored. At the end of the day, I can say that I am grateful. We are in a position of utter reliance upon Him because without it, we would fail miserably.
We are exhausted but He will restore us. Our hearts our broken but He mends them. We don't always have the answers but He knows. He is the answer. I will not give up hope because we have Him. I will not give up because He is my strength. I don't feel alone, though much of the time we are, He is here with us.
The days are long and bleed one day right into the next, day or night is of no consequence to me. The things that used to entertain me no longer interest me, Jesus has become the answer to every question and the whisper in every lull. I thank you Lord for your presence. I thank you for who you are. I thank you that you're holding onto me, as I'm holding onto Cookiepants. I thank you that you're my strength and my fresh air. I thank you that you are limitless when it feels like the walls are pressing in. Lord you are all. You are holy and good, no matter what— you are never swayed.
God has a plan for us all, though at time, we don't understand it. And it seems, the moment we think we do understand, the landscape changes. If there is anything I've learned, don't set up camp anywhere unless God has instructed you to. Don't get too comfortable, you're going to be moving on. Earth isn't our final destination, we're merely passing through. Everything is tentative and impermanent here. Be ready. Be prepared to move, to shift yet again into the person who He is molding you to be.
"Be on the alert. Stand firm in the faith. Be men of courage. Be strong." 1 Corinthians 16:13
"Watch out! Don't let your hearts be dulled by carousing and drunkenness, and by the worries of this life. Don't let that day catch you unaware. like a trap. For that day will come upon everyone living on earth. Keep alert at all times. And pray that you might be strong enough to escape these coming horrors and stand before the Son of Man." Luke 21:34-36
Not only in our circumstance but in any and all, we must be alert and on the ready to flow into the next position we are called to. I never imagined being where I am today, with the set of circumstances I behold but I am here; I am ready, I am willing. THIS is my life. Not tomorrow or next week. It is right NOW. It may not be what I envisioned but it is the path the loving heavenly Father has me walking along. And I will praise Him in these trials. I will praise Him on the days we have victory. I will praise Him when my heart aches and I will praise Him when my heart is brimming with love and adoration. I must not stop. I must not quit. I must not be deterred. I must not be hindered. I will continue to fix my eyes on the Lord because— He is all. He is the great I am. He knows it all and sees it all and there is something great within my spirit that says to me- "I'm following that Man, He knows what He's doing!" Because the truth is folks, not a one of us knows what we're doing unless God has gifted us with the ability to do any one thing or another. All praise and glory to the Father for that too! Oh He is so good, isn't He?
Be blessed today friends, be a blessing to others.
"Today is the day the Lord has made; we will rejoice and be glad in it." Psalm 118:24
Showing posts with label worry. Show all posts
Showing posts with label worry. Show all posts
Thursday, April 20, 2017
Wednesday, February 15, 2017
Trust
It's been a long week and it's only Wednesday... This happens often. It's been a whirlwind few months, this happens often too.
Our trust isn't in ourselves alone because it's fallible. Our strength isn't in ourselves alone because our strength runs out. We don't rely on our own wit or wisdom because we can't see what will happen even 5 minutes from now. I do know Who has an endless supply of strength; wisdom and who is faithful. God!
God brings us through with each step, His Son never leaves our side. He is the steady hand on my shoulder as I work quickly to bring a fever down. He is the quiet voice amidst the crying, He is the calm in the middle of the storm. He is, I am.
We've seen Him present in everything over the course of the last several months. From the femur fracture with Cookiepants, to the surgery and it's timing and now this monster cold that has over taken her. We trust in His loving care to cause her to thirst again. We trust in the fellow believers praying on her behalf, that those prayers are affecting her recovery in a positive way. We trust in His leading, knowing what to do with her and when.
To the world and the worldly mind it sounds like utter madness but it makes perfect sense to us. There is this path we have been traveling along for a few years now that has brought us to this point. To a point of utter reliance and being present. We are here, being who God created us to be, doing or not doing the things He has ordained or asked us to refrain from. That is all. Worry doesn't cloud our thinking nearly as much as it used to. Worry doesn't add to a circumstance, it only takes away your presence of mind. Trying to do everything and all at once- no longer necessary. It never was necessary, we just hadn't understood that yet.
Though our problems aren't solved and our circumstances haven't changed much- though they've improved slowly, I still have peace today. We don't know what the day will hold, as it is unpredictable every day. There is no general thrumb to pick up on and ride the wave through the day. Floating through the day would take away from the intricate details, the little ones that are the reminders that God is still here and His hands are all over everything. I want to see that, I don't want to bury myself in mock busyness just to take my attention away from my current reality. I don't want to displace the pain because I know it would inevitably revisit me and show up somewhere else. Pain has a way of doing that. So don't avoid it, stare it in the face. Be bold. Be brave because God is right there with you.
"Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do no be afraid." John 14:27
This is why I trust Him, if He said it, it will be so. Or the peace that surpasses all understanding. He said it, it will be so. I know that I can trust Jesus, trusting Him doesn't make things easier but I know His promises are true. Much of the things that happen, I don't understand but He does. And I trust Him.
We're still here being who God created us to be, exactly where we are supposed to be. Brighter things are on the horizon, we know this but for now, we trust in His timing and trust His direction.
We used to live within the most common option, which was to trust in ourselves for everything. It didn't work out well and we were exhausted. Trusting in God has alleviated much of the stress and mental and emotional exhaustion. This is where I would rather be, this is where I would rather live my life- over here with God.
With trust, comes peace. Reach out to the only one that knows, He will never leave you nor forsake you.
For more insight on this subject matter pick up a copy of: Human, being. Now available online.
www.lulu.com/spotlight/sarastjohn
sarastjohn.wixsite.com/author
God bless.
Our trust isn't in ourselves alone because it's fallible. Our strength isn't in ourselves alone because our strength runs out. We don't rely on our own wit or wisdom because we can't see what will happen even 5 minutes from now. I do know Who has an endless supply of strength; wisdom and who is faithful. God!
God brings us through with each step, His Son never leaves our side. He is the steady hand on my shoulder as I work quickly to bring a fever down. He is the quiet voice amidst the crying, He is the calm in the middle of the storm. He is, I am.
We've seen Him present in everything over the course of the last several months. From the femur fracture with Cookiepants, to the surgery and it's timing and now this monster cold that has over taken her. We trust in His loving care to cause her to thirst again. We trust in the fellow believers praying on her behalf, that those prayers are affecting her recovery in a positive way. We trust in His leading, knowing what to do with her and when.
To the world and the worldly mind it sounds like utter madness but it makes perfect sense to us. There is this path we have been traveling along for a few years now that has brought us to this point. To a point of utter reliance and being present. We are here, being who God created us to be, doing or not doing the things He has ordained or asked us to refrain from. That is all. Worry doesn't cloud our thinking nearly as much as it used to. Worry doesn't add to a circumstance, it only takes away your presence of mind. Trying to do everything and all at once- no longer necessary. It never was necessary, we just hadn't understood that yet.
Though our problems aren't solved and our circumstances haven't changed much- though they've improved slowly, I still have peace today. We don't know what the day will hold, as it is unpredictable every day. There is no general thrumb to pick up on and ride the wave through the day. Floating through the day would take away from the intricate details, the little ones that are the reminders that God is still here and His hands are all over everything. I want to see that, I don't want to bury myself in mock busyness just to take my attention away from my current reality. I don't want to displace the pain because I know it would inevitably revisit me and show up somewhere else. Pain has a way of doing that. So don't avoid it, stare it in the face. Be bold. Be brave because God is right there with you.
"Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do no be afraid." John 14:27
This is why I trust Him, if He said it, it will be so. Or the peace that surpasses all understanding. He said it, it will be so. I know that I can trust Jesus, trusting Him doesn't make things easier but I know His promises are true. Much of the things that happen, I don't understand but He does. And I trust Him.
We're still here being who God created us to be, exactly where we are supposed to be. Brighter things are on the horizon, we know this but for now, we trust in His timing and trust His direction.
We used to live within the most common option, which was to trust in ourselves for everything. It didn't work out well and we were exhausted. Trusting in God has alleviated much of the stress and mental and emotional exhaustion. This is where I would rather be, this is where I would rather live my life- over here with God.
With trust, comes peace. Reach out to the only one that knows, He will never leave you nor forsake you.
For more insight on this subject matter pick up a copy of: Human, being. Now available online.
www.lulu.com/spotlight/sarastjohn
sarastjohn.wixsite.com/author
God bless.
Monday, January 2, 2017
We're still here!
2016 gave us white knuckles at times, barely holding onto much of anything and certainly not ourselves. Once again it was another year of learning; trial/error, crashing and burning too. It was a year of sitting and watching as those around us were living their lives while it felt like we were living someone else's.
We watched families lose loved ones and mourned with them. While at the same time we gained an addition to our family and rejoiced in God's goodness. We watched milestones met, with the realization that others were surpassed a long time ago. At times the reality of it was overwhelming and other times we simply celebrated where we are. We are whatever we are, whatever that is. We're here, we're alive and we're still breathing. While there may have been many things that were meant to harm us, with tear stricken faces as times we still praised. God is still good. Even when we haven't understood, God is still good.
If 2016 taught me anything it was a continue to praise even when I don't feel like it and also not to get comfortable with my plans. There isn't much that happened in 2016 that happened just as we planned. Judah came into the world quietly and gently, healing parts of my ever broken heart. Cookiepants decided that she would hold her own bottle the day we brought her brother home from the hospital. Another thing I learned is that help comes from the most unexpected places and people. And the ones you would believe would be there scatter still. I'm not mad though, it's just life and it's all a part of God's grand plan. I know that He is sovereign over that part of our life too. Sometimes old friends are drawn back together while others drift further away. I've learned not to count on anything but God's hand in this life, who He draws near.
He has been faithful when I haven't been, He's loved me when I was unlovable. Jesus has been there every step of the way. There were many times I felt alone or overwhelmed, you'll have that with this set of circumstances... I'm still learning that, everyday.
I've finally come around to the concept of making some plans and having dreams and hopes again. Those things were dashed away a few years ago, all felt lost. I am often reminded, because we're still here that God has a plan for our life. A plan to prosper us and not to harm us. I'm comforted by that. There were times where I just about scoffed at that scripture in my darker moments. But I've learned that even when it's hard to believe, I must believe.
One thing I must carry into 2017 is the knowledge that plans and dreams are fine and good, they give me something to strive toward. But God ultimately determines where we go and who we're with. We will continue to make plans for the future and pray that they turn out better than we had hoped for. God is capable to knitting things together for our life far grander than anything that we could ever dream up or imagine. Oh how wonderful does that sound!?
I'm looking forward to 2017 and all that it has to offer, I'm hoping there won't be so many bumps and bruises this year but this is life and those happen. They hurt, often badly... I just have to remember to feel them instead of just tossing those feeling aside. I am only human after all, though most of the time, my obligations should be assigned to someone who is super human. But God takes care of that piece too, filling me with His strength. I know that I can't go a day without Him.
The end of 2016 felt like a tidal wave of sewing up gaps and it hit pretty hard. The week of Christmas especially. I praised as I held my cat for the last time. I praised as I waited in the waiting room for Cookiepants to get out of surgery. We praised as Cookiepants opened Christmas gifts for the first time ever, as did Judah. It was adorable. It was quiet and it was just the four of us, just as God intended I guess. We sat in our Christmas light lit home, watching old movies, enjoying one another's company and holding each other close. Just as we were supposed to.
There is nothing else that could have taught us to love one another and appreciate each other the way that we do. Whatever we have been through has gotten us here and whether it was "good or bad" we wouldn't be the same without it. I wouldn't love and admire my husband the way I do today had it not been for everything we've been through together. When Judah calls out for his "mama," it wouldn't sound as sweet as it does had it not been for nonverbal cues from Cookiepants. One day we will appreciate a bigger home that much more, after having lived in a home that we're convinced we've out grown. And winter (don't get me started) I'll soon appreciate the meaning of winter one day when we move somewhere more temperate. It's all there, it's all in the plan. But mostly, I recognize it's not my plan. And I can't look back and state without a doubt that this or that happened because I needed to learn this. But what I do know, I'm just going to trust Him in this new year. I'm going to try and press into Him harder and when I want to throw my hands up in agony and give up- that's when I just need to drop to my knees and pray/praise. Truth be told, I just don't know... I can't see tomorrow. I don't know what I'm going to do next week or even what I'm going to eat for lunch tomorrow.
So here I am. I'm waiting and I'm watching and I'm praying. He see's me. He hears me and He knows. He know's the desires of my heart.
Thank you to those of you who are still here or who I've had the great pleasure of reconnecting with. And to those who have fallen behind- if you have to think about it, yeah, it's probably you... But to you, we were what we were for a time and that is all. And I'm grateful for what it was because it was all a part of this wonderful web called life.
2017, here we come!
God bless.
We watched families lose loved ones and mourned with them. While at the same time we gained an addition to our family and rejoiced in God's goodness. We watched milestones met, with the realization that others were surpassed a long time ago. At times the reality of it was overwhelming and other times we simply celebrated where we are. We are whatever we are, whatever that is. We're here, we're alive and we're still breathing. While there may have been many things that were meant to harm us, with tear stricken faces as times we still praised. God is still good. Even when we haven't understood, God is still good.
If 2016 taught me anything it was a continue to praise even when I don't feel like it and also not to get comfortable with my plans. There isn't much that happened in 2016 that happened just as we planned. Judah came into the world quietly and gently, healing parts of my ever broken heart. Cookiepants decided that she would hold her own bottle the day we brought her brother home from the hospital. Another thing I learned is that help comes from the most unexpected places and people. And the ones you would believe would be there scatter still. I'm not mad though, it's just life and it's all a part of God's grand plan. I know that He is sovereign over that part of our life too. Sometimes old friends are drawn back together while others drift further away. I've learned not to count on anything but God's hand in this life, who He draws near.
He has been faithful when I haven't been, He's loved me when I was unlovable. Jesus has been there every step of the way. There were many times I felt alone or overwhelmed, you'll have that with this set of circumstances... I'm still learning that, everyday.
I've finally come around to the concept of making some plans and having dreams and hopes again. Those things were dashed away a few years ago, all felt lost. I am often reminded, because we're still here that God has a plan for our life. A plan to prosper us and not to harm us. I'm comforted by that. There were times where I just about scoffed at that scripture in my darker moments. But I've learned that even when it's hard to believe, I must believe.
One thing I must carry into 2017 is the knowledge that plans and dreams are fine and good, they give me something to strive toward. But God ultimately determines where we go and who we're with. We will continue to make plans for the future and pray that they turn out better than we had hoped for. God is capable to knitting things together for our life far grander than anything that we could ever dream up or imagine. Oh how wonderful does that sound!?
I'm looking forward to 2017 and all that it has to offer, I'm hoping there won't be so many bumps and bruises this year but this is life and those happen. They hurt, often badly... I just have to remember to feel them instead of just tossing those feeling aside. I am only human after all, though most of the time, my obligations should be assigned to someone who is super human. But God takes care of that piece too, filling me with His strength. I know that I can't go a day without Him.
The end of 2016 felt like a tidal wave of sewing up gaps and it hit pretty hard. The week of Christmas especially. I praised as I held my cat for the last time. I praised as I waited in the waiting room for Cookiepants to get out of surgery. We praised as Cookiepants opened Christmas gifts for the first time ever, as did Judah. It was adorable. It was quiet and it was just the four of us, just as God intended I guess. We sat in our Christmas light lit home, watching old movies, enjoying one another's company and holding each other close. Just as we were supposed to.
There is nothing else that could have taught us to love one another and appreciate each other the way that we do. Whatever we have been through has gotten us here and whether it was "good or bad" we wouldn't be the same without it. I wouldn't love and admire my husband the way I do today had it not been for everything we've been through together. When Judah calls out for his "mama," it wouldn't sound as sweet as it does had it not been for nonverbal cues from Cookiepants. One day we will appreciate a bigger home that much more, after having lived in a home that we're convinced we've out grown. And winter (don't get me started) I'll soon appreciate the meaning of winter one day when we move somewhere more temperate. It's all there, it's all in the plan. But mostly, I recognize it's not my plan. And I can't look back and state without a doubt that this or that happened because I needed to learn this. But what I do know, I'm just going to trust Him in this new year. I'm going to try and press into Him harder and when I want to throw my hands up in agony and give up- that's when I just need to drop to my knees and pray/praise. Truth be told, I just don't know... I can't see tomorrow. I don't know what I'm going to do next week or even what I'm going to eat for lunch tomorrow.
So here I am. I'm waiting and I'm watching and I'm praying. He see's me. He hears me and He knows. He know's the desires of my heart.
Thank you to those of you who are still here or who I've had the great pleasure of reconnecting with. And to those who have fallen behind- if you have to think about it, yeah, it's probably you... But to you, we were what we were for a time and that is all. And I'm grateful for what it was because it was all a part of this wonderful web called life.
2017, here we come!
God bless.
Friday, March 18, 2016
Surrender...
It's been a tough week, i'm not going to try and hide it. My mind has been running a million miles a minute at times, it's seemed. I try to refocus on the Lord but He seems so far away but really, it's me.
Lily has been sick all week. We knew something was wrong Sunday night when she refused her milk bottle, something she's never done. She's been knock down drag out sick and still taken milk. We put her to bed that night and even though we didn't say it, we knew we were going to wake up to a sick cookie in the morning.
It wasn't until afternoon until her fever really reared it's head. I went through the usual routine of stripping her down to just a diaper to try and cool her off. I can't give her tylenol because she will throw medicine back up. It's just what she's always done. So I put peppermint on her feet like usual and hung out on the floor with her. She began to scream and cry, I knew she was miserable. Her temperature spiked up to 103.9, that was in the ear that was facing up. Lord only knows how much hotter the other side would have registered.
My husband was at work and fortunately our oldest was home, so she helped by getting me a cold washcloth so I could wipe Lily down. I approached her with the thermometer once again and she freaked out, screaming and crying, swatting at it. I'd never seen her so wild eyed, it scared me, if I'm telling the truth here.
I made her a bottle of cold coconut water, praying she'd drink it and amazingly she did. She drank it faster than I think i'd ever seen her drink a bottle. She was in trouble and I think she knew it too. It was a huge blessing to see her so willing to drink some water, otherwise I don't know what would have happened. I don't want to think about it either.
My husband was able to get out of work early, given the emergent nature the evening at home had taken. I wasn't able to handle this on my own. Lily needed to get into urgent care immediately and I stayed with the other kids.
They said it was a double ear infection, which has turned out to not be the case. They did prescribe medicine, we tried giving it to her. She refused it.
So after a visit to the regular doctor, who is of course, still a specialist, she got an antibiotic shot. It's been 5 days since this whole adventure began and things still aren't back to normal. I'm still trying to convince her to drink her milk. If you know Lily, you know it isn't hard to get her to drink her milk. This has been uncharted territory for us.
I've broken down into tears several times this week, it's hard to watch your baby go through something and not be able to do a thing about it. She cries and moans and I have no idea why and no clue on how to comfort her other than the usual stuff, like lots of cuddling. But cuddling wasn't enough. She's been in pain and for Lily it must be tremendous because she has an extremely high pain tolerance.
We have no idea what plagued her and I've been in close contact with her doctor. He tells me to call if she gets worse. I pray I don't have to make that phone call.
Surrender. Why did I title this post, Surrender. That's where I need to be. That's where I've struggled to be all week. Lily turned 2 this month, an occasion we were never sure we'd see. It was a special birthday celebration! She was surrounded by loved ones and a party atmosphere. It was great. I even gave her a cupcake to smash around and play with, even knowing she can't eat it. But we made it fun. She seemed to enjoy herself.
I say surrender because I have no control over anything, still. It's been 2 years that Lily has been in our lives and she's no more ours than the day she was born. She's been given to us to care for. It's a hard reality... You spend a lot of time with someone; give birth to them, you begin to think they're yours, not in a ownership sense but you know what I mean. It's a tough reality, really. We're care givers. I'm a care taker for Lily. She is my responsibility. For me, it has been a journey of surrender. I've struggled throughout my whole life with trying to control things, make them happen as I see fit. I believe it's a natural reaction. I've wanted so badly to fix; manipulate, control, tweak, abolish things for Lily. To her benefit, of course. I've never wanted to change her because I know she's perfect just the way she is but I sure wish she was happier; healthier, more comfortable, more content etc... Whatever it is that her little heart desires, I want to give it to her. She has fought long and hard the last two years, I want nothing more than to give her anything her little heart desires... But there seems to be a problem with that idea, I can't. I don't have the ability. I often don't have the ability to fix her ailments. Or stop the crying. Or the pain. I can only seek God and His guidance.
It's been a continual process for me, this surrender, everyday. And it's a work in progress that I'm just not ashamed of. It's God's continual work in me that makes me better. It's the challenges that we face everyday that stretch me beyond my realm of comfort. (I don't like it) But I know it's making me better, it's strengthening me. It's making me a better wife and mother and over all a better person.
The days that I am the most tired are the days I'm trying the hardest to fix it all. It is without a doubt my nature to try and fix things. It's deeply ingrained within me, so it's a constant battle. I fall back into old habits some days and work myself into a knot. I get an amnesia of sorts and forget who I am and who my Father is too.
As I said before, today is day 5 of her still not being herself. She's been fussy and whimpering. It's always concerning when Lily is sick, we never know where it's going to take us. She doesn't get over things like most people do. She gets sick much easier than other people do too. Winters are rough and this Midwestern climate we live in is probably one of the worst for her. The best we can do is be wise in our decisions regarding keeping her healthy and safe. Sometimes things just happen, it always results in flipping our house upside down.
I am entrusting Lily's health to the great healer of the universe because I can't heal her. She can't tell me what's wrong either but God knows. I will continue to surrender her to God. It's the only thing I can do. I feel honored to have been chosen along with my husband to take care of Lily. It's been a difficult road but a rewarding one. Even on the difficult days as long as I keep my eyes on the Lord and live in a place of surrender everything turns out much better.
I will say this though, this is not some cookie cutter blog post. I am exhausted. I still get angry. I don't get the chance to eat when I need to and I forget to drink water because I'm trying to stay caffeinated. Some days I want to hide. I'm an imperfect mother on my own but I know God is making me who my husband and kids need me to be... And I can stand on God's work in my heart alone.
Lily has been sick all week. We knew something was wrong Sunday night when she refused her milk bottle, something she's never done. She's been knock down drag out sick and still taken milk. We put her to bed that night and even though we didn't say it, we knew we were going to wake up to a sick cookie in the morning.
It wasn't until afternoon until her fever really reared it's head. I went through the usual routine of stripping her down to just a diaper to try and cool her off. I can't give her tylenol because she will throw medicine back up. It's just what she's always done. So I put peppermint on her feet like usual and hung out on the floor with her. She began to scream and cry, I knew she was miserable. Her temperature spiked up to 103.9, that was in the ear that was facing up. Lord only knows how much hotter the other side would have registered.
My husband was at work and fortunately our oldest was home, so she helped by getting me a cold washcloth so I could wipe Lily down. I approached her with the thermometer once again and she freaked out, screaming and crying, swatting at it. I'd never seen her so wild eyed, it scared me, if I'm telling the truth here.
I made her a bottle of cold coconut water, praying she'd drink it and amazingly she did. She drank it faster than I think i'd ever seen her drink a bottle. She was in trouble and I think she knew it too. It was a huge blessing to see her so willing to drink some water, otherwise I don't know what would have happened. I don't want to think about it either.
My husband was able to get out of work early, given the emergent nature the evening at home had taken. I wasn't able to handle this on my own. Lily needed to get into urgent care immediately and I stayed with the other kids.
They said it was a double ear infection, which has turned out to not be the case. They did prescribe medicine, we tried giving it to her. She refused it.
So after a visit to the regular doctor, who is of course, still a specialist, she got an antibiotic shot. It's been 5 days since this whole adventure began and things still aren't back to normal. I'm still trying to convince her to drink her milk. If you know Lily, you know it isn't hard to get her to drink her milk. This has been uncharted territory for us.
I've broken down into tears several times this week, it's hard to watch your baby go through something and not be able to do a thing about it. She cries and moans and I have no idea why and no clue on how to comfort her other than the usual stuff, like lots of cuddling. But cuddling wasn't enough. She's been in pain and for Lily it must be tremendous because she has an extremely high pain tolerance.
We have no idea what plagued her and I've been in close contact with her doctor. He tells me to call if she gets worse. I pray I don't have to make that phone call.
Surrender. Why did I title this post, Surrender. That's where I need to be. That's where I've struggled to be all week. Lily turned 2 this month, an occasion we were never sure we'd see. It was a special birthday celebration! She was surrounded by loved ones and a party atmosphere. It was great. I even gave her a cupcake to smash around and play with, even knowing she can't eat it. But we made it fun. She seemed to enjoy herself.
I say surrender because I have no control over anything, still. It's been 2 years that Lily has been in our lives and she's no more ours than the day she was born. She's been given to us to care for. It's a hard reality... You spend a lot of time with someone; give birth to them, you begin to think they're yours, not in a ownership sense but you know what I mean. It's a tough reality, really. We're care givers. I'm a care taker for Lily. She is my responsibility. For me, it has been a journey of surrender. I've struggled throughout my whole life with trying to control things, make them happen as I see fit. I believe it's a natural reaction. I've wanted so badly to fix; manipulate, control, tweak, abolish things for Lily. To her benefit, of course. I've never wanted to change her because I know she's perfect just the way she is but I sure wish she was happier; healthier, more comfortable, more content etc... Whatever it is that her little heart desires, I want to give it to her. She has fought long and hard the last two years, I want nothing more than to give her anything her little heart desires... But there seems to be a problem with that idea, I can't. I don't have the ability. I often don't have the ability to fix her ailments. Or stop the crying. Or the pain. I can only seek God and His guidance.
It's been a continual process for me, this surrender, everyday. And it's a work in progress that I'm just not ashamed of. It's God's continual work in me that makes me better. It's the challenges that we face everyday that stretch me beyond my realm of comfort. (I don't like it) But I know it's making me better, it's strengthening me. It's making me a better wife and mother and over all a better person.
The days that I am the most tired are the days I'm trying the hardest to fix it all. It is without a doubt my nature to try and fix things. It's deeply ingrained within me, so it's a constant battle. I fall back into old habits some days and work myself into a knot. I get an amnesia of sorts and forget who I am and who my Father is too.
As I said before, today is day 5 of her still not being herself. She's been fussy and whimpering. It's always concerning when Lily is sick, we never know where it's going to take us. She doesn't get over things like most people do. She gets sick much easier than other people do too. Winters are rough and this Midwestern climate we live in is probably one of the worst for her. The best we can do is be wise in our decisions regarding keeping her healthy and safe. Sometimes things just happen, it always results in flipping our house upside down.
I am entrusting Lily's health to the great healer of the universe because I can't heal her. She can't tell me what's wrong either but God knows. I will continue to surrender her to God. It's the only thing I can do. I feel honored to have been chosen along with my husband to take care of Lily. It's been a difficult road but a rewarding one. Even on the difficult days as long as I keep my eyes on the Lord and live in a place of surrender everything turns out much better.
I will say this though, this is not some cookie cutter blog post. I am exhausted. I still get angry. I don't get the chance to eat when I need to and I forget to drink water because I'm trying to stay caffeinated. Some days I want to hide. I'm an imperfect mother on my own but I know God is making me who my husband and kids need me to be... And I can stand on God's work in my heart alone.
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