"Simon, Simon, Satan has asked to sift all of you as wheat." Luke 22:31
Satan has asked... Yes, asked.
"The thief comes only to steal and kill and destroy, I have come that they may have life, and have it to the full." John 10:10
In moments of frustration, Satan is fighting hard to steal your joy. In times of trouble, Satan is seeking to destroy your positive attitude. And when there looks to be no end to the misery, Satan is fighting hard to kill your hope.
Satan has asked to sift you as wheat, not to mention the text above says: all of you. Sift us as wheat; run us through the ringer, drag us through the mud, swing at us in a boxing match... We're in a war. It is a war and it has been cleared by the King of Kings.
It's not cruel considering God's number one priority is our spiritual development and oneness with Him. This life is temporary. Our troubles are momentary. But while in the midst of them, they're at times overwhelming and consuming.
Have you ever been under attack in the same way, over and over again? Or have you been under a string of attacks?
Let me ask you this, how did you react? Did you lose your crap? Scream; yell, shout, throw things, cuss? Or did you just stop in the midst of it, no matter how urgent it seemed and pray instead?
When you're in school and the teacher gives you a test, there are a series of questions you must fill out to get a passing grade, right? If you don't answer enough of the questions correctly, you're going to fail that test. In combination with all the other failed tests, the end of the year has come and you don't move onto the next grade. You failed to show the teacher that you retained enough information to move onto the next grade. So, next year, you get to go through that same grade all over again.
How is life any different? How is becoming a well rounded person in Christ any different? Our aim as followers of Jesus Christ is to become more like Him. It's best for us, He set the best possibly example of how a human should conduct themselves here on planet earth. If you don't believe me, read more of His words. He didn't walk around jaded and worn down by the weight of the world. He walked with boldness and certainty. He had a beautiful soul. He loved everyone. He is peace. He is life. That is my aim.
It hasn't been an easy road being molded to be more like Jesus. I'd be lying if I said it was a walk in the park because it hasn't been. I've cried; I've wept, I've yelled and cussed. But I've also prayed; praised, sang and persevered. My walk hadn't changed one bit until I changed my reaction.
Yes, I changed my reaction. It is the only thing I have control over in my life- my attitude and how I react. Think about it for a moment, what can you control?
—Nothing.
When the walls are pressing in and I'm exhausted and just can't do it anymore, I'm changing my reaction. The situation doesn't seem to weighty anymore. It feels more doable. An end appears. I pray. I pray my way through it, as I'm wading through the mud of life. I'm never alone, Jesus is always with me, so why wouldn't I talk to Him. We're going through this together, He is the one who gives me strength.
Do you have those days where it's just one thing after another? The kids; the coffee maker, the car, the traffic, spilled coffee on your lap, that annoying coworker. Look at your reaction. Don't blame it on the universe being out to get you. This has more to do with you that you realize. And here's a bit to get angry about, Satan is betting against you. Oh he sure is, he wants to see you lose. He wants to see you fall flat on your face so he can come back next week and hit you just as hard for the same stuff. Doesn't that make you angry? He is betting against you and wants you to lose your crap... What are we supposed to do?
War against him. Change your reaction. He's trying to get your goat, don't let him. Your poor reaction leaves the door cracked open for spiritual attacks.
"In your anger do not sin. Do not let the sun go down while you are still angry, and do not give the devil a foothold." Ephesians 4:26-27
When faced with adversity, don't react poorly, you look foolish. You're being laughed at by the enemy and his dark followers. How is your poor reaction any different from that of a 3 year old having a temper tantrum? It isn't. We're adults, we're followers of Christ. Let's seek out godly council, pray and react appropriately.
Jesus is your strength. Jesus will spur you on and give you whatever is necessary to press on. I know like can really stink sometimes but our ridiculous reaction just makes it worse and secures us a spot for continued attacks. The best encouragement I can find to support this; "Submit yourselves, then, to God. Resist the devil, and he will flee from you." James 4:7
An antagonist will eventually give up when they're not getting the reaction they desire from you. Submit yourselves to God! Pray. Trust. Press in. Submit. Resist by not giving in. Say no. Talk to Jesus. Satan will leave you alone. He has to because you closed the door that allowed him in.
Friends, I know we've all been here. It's part of life. Life wasn't meant to make us happy- although we find happiness while we're here. Life was meant to mold us into the character and nature of Christ. We could have no better role model than He. Praise Him in your trials, press into Him. He defeated death and the devil. We don't know how to navigate through the minefields of life, but He does.
Have a blessed day friends!
Showing posts with label support. Show all posts
Showing posts with label support. Show all posts
Thursday, March 9, 2017
Sunday, March 5, 2017
Relationships
Reality is a strange thing... It isn't what we think it is either. There is a whole other alternate realm in which we move about, yet can't see. I know there are some twisted teachings on this, some more new age twisted ones. I know because I used to read the material and "practice" it. As always the enemy takes what is good and twists it.
There are things that we can't see that we're protected from, sometimes we find out what those things were and other times we don't. We are always in danger of some snare somewhere.
"Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour." 1 Peter 5:8
There are things God protects us from and there are pitfalls we can avoid but being aware and by praying continually. "Rejoice always, pray continually, give thanks in all circumstances; for this is God's will for you in Christ Jesus." 1 Thessalonians 5:16-18
It sounds complicated, praying all the time. I think of it as talking to Jesus all day long, even if what you're saying is what you would deem boring. It's a relationship in which you share everything, even your silly little trivial thoughts. He already knows what you're thinking, the obedience and gesture of friendship is in saying those things out loud.
Jesus can even help you make decisions. "Lord, is this your will? What do you want me to do in this circumstance?" The Holy spirit knows when it's time to speak and when it's time to keep your mouth shut. If I didn't heed the Holy Spirits prompting I would say all kinds of things that weren't helpful or of use to others. It's not hard, it just requires a bit of obedience on our parts. Talking to God all day is far more real than the chair your sitting in. God is eternal. This world is temporal. That sums it up. And if Jesus Christ is your Lord and savior and you're going to spend eternity with Him, don't you want to talk to Him everyday- all day long? I know I do! I get distracted. There are so many things to distract me away from what is most important. But that is also part of the enemy's plan too.
When you're feeling that ancient spirit of getting over whelmed- know that readjusting your gaze back to God will diminish it. Life says- do everything NOW. God says- in My timing. Our enemy comes only to steal and kill and destroy. (John 10;10) Talking to God will help you discern what needs to be attended to immediately and what doesn't. It's amazing the things that will distract us away from what matters more.
We also live in an age where being social means logging into our social media account. Which doesn't supplement real human contact but in some cases, we've allowed it to. We have successfully substituted real friendships for "only at my convenience" and "just give me a quick rundown." Does that really replace face to face communication? No! We are accepting cheap substitutes for real friendships. Is social media nice to keep in touch with people who don't live in the same country or state as you? Absolutely, yes. But if it's a legitimate friendship, you're not keeping tabs on one another just by your status update and choreographed pictures that are posted.
Our enemy is quite crafty when it comes to the allure of what he has in mind. Everything that he does offer is nothing but a cheap substitution. It's like paying Prada prices for a knock off bag where the stitches are all misaligned. That's not Prada.
I listened to a sermon yesterday that served as a good reminded for all friendships, not just marriages. There was one scripture that stood out to me the most- "A friend loves at all times, and a brother is born for a time of adversity." Proverbs 17:17
Born for a time of adversity... Real family and friends are the ones that stick around. Real friends and family are the ones that bear your burdens with you so the weight of it isn't so heavy. Jesus was the ultimate weight bearer but we are designed to be in community with one another too. Do you step up when your friend is in need? Or just when it's merely convenient to be friends with them? The light and trivial stuff.
I've seen a recent outcry against fake friends and superficial relationships but where is the effort? Where is your effort? Are you putting in the time and the effort? Or are you happy to live in the superficial world that has been laid out before us? The one that will not stand the test of time. First and foremost our relationship with God needs to be in good order, constant communion with Him. Second, our family relationships and friendships will either fall into place to lay by the wayside. I know there comes this point of frustration where you've exhibited the effort necessary to sustain a relationship but the effort hasn't been reciprocated. What answer is there for that? Pray for them and forgive them. We all must live from a place of constant forgiveness. Many times the offense against us isn't on purpose but that doesn't mean it doesn't happen.
God is sovereign, if God is sovereign then our friendships are contingent upon who He allows in our life too. If a relationship is wildly out of balance as concerns effort maybe it's just a closed door and it's time to stop banging on it and walk away.
God is so good. His goodness is all around us if he are willing to be of sober mind and thank Him continually for His goodness. Don't settle for less than God's best in your life, that goes for everything that is available to us. Whether it's friends, things or places. There isn't anything that isn't from God that is worth having. You will always be left with a feeling of emptiness.
Have a blessed day friends.
There are things that we can't see that we're protected from, sometimes we find out what those things were and other times we don't. We are always in danger of some snare somewhere.
"Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour." 1 Peter 5:8
There are things God protects us from and there are pitfalls we can avoid but being aware and by praying continually. "Rejoice always, pray continually, give thanks in all circumstances; for this is God's will for you in Christ Jesus." 1 Thessalonians 5:16-18
It sounds complicated, praying all the time. I think of it as talking to Jesus all day long, even if what you're saying is what you would deem boring. It's a relationship in which you share everything, even your silly little trivial thoughts. He already knows what you're thinking, the obedience and gesture of friendship is in saying those things out loud.
Jesus can even help you make decisions. "Lord, is this your will? What do you want me to do in this circumstance?" The Holy spirit knows when it's time to speak and when it's time to keep your mouth shut. If I didn't heed the Holy Spirits prompting I would say all kinds of things that weren't helpful or of use to others. It's not hard, it just requires a bit of obedience on our parts. Talking to God all day is far more real than the chair your sitting in. God is eternal. This world is temporal. That sums it up. And if Jesus Christ is your Lord and savior and you're going to spend eternity with Him, don't you want to talk to Him everyday- all day long? I know I do! I get distracted. There are so many things to distract me away from what is most important. But that is also part of the enemy's plan too.
When you're feeling that ancient spirit of getting over whelmed- know that readjusting your gaze back to God will diminish it. Life says- do everything NOW. God says- in My timing. Our enemy comes only to steal and kill and destroy. (John 10;10) Talking to God will help you discern what needs to be attended to immediately and what doesn't. It's amazing the things that will distract us away from what matters more.
We also live in an age where being social means logging into our social media account. Which doesn't supplement real human contact but in some cases, we've allowed it to. We have successfully substituted real friendships for "only at my convenience" and "just give me a quick rundown." Does that really replace face to face communication? No! We are accepting cheap substitutes for real friendships. Is social media nice to keep in touch with people who don't live in the same country or state as you? Absolutely, yes. But if it's a legitimate friendship, you're not keeping tabs on one another just by your status update and choreographed pictures that are posted.
Our enemy is quite crafty when it comes to the allure of what he has in mind. Everything that he does offer is nothing but a cheap substitution. It's like paying Prada prices for a knock off bag where the stitches are all misaligned. That's not Prada.
I listened to a sermon yesterday that served as a good reminded for all friendships, not just marriages. There was one scripture that stood out to me the most- "A friend loves at all times, and a brother is born for a time of adversity." Proverbs 17:17
Born for a time of adversity... Real family and friends are the ones that stick around. Real friends and family are the ones that bear your burdens with you so the weight of it isn't so heavy. Jesus was the ultimate weight bearer but we are designed to be in community with one another too. Do you step up when your friend is in need? Or just when it's merely convenient to be friends with them? The light and trivial stuff.
I've seen a recent outcry against fake friends and superficial relationships but where is the effort? Where is your effort? Are you putting in the time and the effort? Or are you happy to live in the superficial world that has been laid out before us? The one that will not stand the test of time. First and foremost our relationship with God needs to be in good order, constant communion with Him. Second, our family relationships and friendships will either fall into place to lay by the wayside. I know there comes this point of frustration where you've exhibited the effort necessary to sustain a relationship but the effort hasn't been reciprocated. What answer is there for that? Pray for them and forgive them. We all must live from a place of constant forgiveness. Many times the offense against us isn't on purpose but that doesn't mean it doesn't happen.
God is sovereign, if God is sovereign then our friendships are contingent upon who He allows in our life too. If a relationship is wildly out of balance as concerns effort maybe it's just a closed door and it's time to stop banging on it and walk away.
God is so good. His goodness is all around us if he are willing to be of sober mind and thank Him continually for His goodness. Don't settle for less than God's best in your life, that goes for everything that is available to us. Whether it's friends, things or places. There isn't anything that isn't from God that is worth having. You will always be left with a feeling of emptiness.
Have a blessed day friends.
Wednesday, February 15, 2017
Trust
It's been a long week and it's only Wednesday... This happens often. It's been a whirlwind few months, this happens often too.
Our trust isn't in ourselves alone because it's fallible. Our strength isn't in ourselves alone because our strength runs out. We don't rely on our own wit or wisdom because we can't see what will happen even 5 minutes from now. I do know Who has an endless supply of strength; wisdom and who is faithful. God!
God brings us through with each step, His Son never leaves our side. He is the steady hand on my shoulder as I work quickly to bring a fever down. He is the quiet voice amidst the crying, He is the calm in the middle of the storm. He is, I am.
We've seen Him present in everything over the course of the last several months. From the femur fracture with Cookiepants, to the surgery and it's timing and now this monster cold that has over taken her. We trust in His loving care to cause her to thirst again. We trust in the fellow believers praying on her behalf, that those prayers are affecting her recovery in a positive way. We trust in His leading, knowing what to do with her and when.
To the world and the worldly mind it sounds like utter madness but it makes perfect sense to us. There is this path we have been traveling along for a few years now that has brought us to this point. To a point of utter reliance and being present. We are here, being who God created us to be, doing or not doing the things He has ordained or asked us to refrain from. That is all. Worry doesn't cloud our thinking nearly as much as it used to. Worry doesn't add to a circumstance, it only takes away your presence of mind. Trying to do everything and all at once- no longer necessary. It never was necessary, we just hadn't understood that yet.
Though our problems aren't solved and our circumstances haven't changed much- though they've improved slowly, I still have peace today. We don't know what the day will hold, as it is unpredictable every day. There is no general thrumb to pick up on and ride the wave through the day. Floating through the day would take away from the intricate details, the little ones that are the reminders that God is still here and His hands are all over everything. I want to see that, I don't want to bury myself in mock busyness just to take my attention away from my current reality. I don't want to displace the pain because I know it would inevitably revisit me and show up somewhere else. Pain has a way of doing that. So don't avoid it, stare it in the face. Be bold. Be brave because God is right there with you.
"Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do no be afraid." John 14:27
This is why I trust Him, if He said it, it will be so. Or the peace that surpasses all understanding. He said it, it will be so. I know that I can trust Jesus, trusting Him doesn't make things easier but I know His promises are true. Much of the things that happen, I don't understand but He does. And I trust Him.
We're still here being who God created us to be, exactly where we are supposed to be. Brighter things are on the horizon, we know this but for now, we trust in His timing and trust His direction.
We used to live within the most common option, which was to trust in ourselves for everything. It didn't work out well and we were exhausted. Trusting in God has alleviated much of the stress and mental and emotional exhaustion. This is where I would rather be, this is where I would rather live my life- over here with God.
With trust, comes peace. Reach out to the only one that knows, He will never leave you nor forsake you.
For more insight on this subject matter pick up a copy of: Human, being. Now available online.
www.lulu.com/spotlight/sarastjohn
sarastjohn.wixsite.com/author
God bless.
Our trust isn't in ourselves alone because it's fallible. Our strength isn't in ourselves alone because our strength runs out. We don't rely on our own wit or wisdom because we can't see what will happen even 5 minutes from now. I do know Who has an endless supply of strength; wisdom and who is faithful. God!
God brings us through with each step, His Son never leaves our side. He is the steady hand on my shoulder as I work quickly to bring a fever down. He is the quiet voice amidst the crying, He is the calm in the middle of the storm. He is, I am.
We've seen Him present in everything over the course of the last several months. From the femur fracture with Cookiepants, to the surgery and it's timing and now this monster cold that has over taken her. We trust in His loving care to cause her to thirst again. We trust in the fellow believers praying on her behalf, that those prayers are affecting her recovery in a positive way. We trust in His leading, knowing what to do with her and when.
To the world and the worldly mind it sounds like utter madness but it makes perfect sense to us. There is this path we have been traveling along for a few years now that has brought us to this point. To a point of utter reliance and being present. We are here, being who God created us to be, doing or not doing the things He has ordained or asked us to refrain from. That is all. Worry doesn't cloud our thinking nearly as much as it used to. Worry doesn't add to a circumstance, it only takes away your presence of mind. Trying to do everything and all at once- no longer necessary. It never was necessary, we just hadn't understood that yet.
Though our problems aren't solved and our circumstances haven't changed much- though they've improved slowly, I still have peace today. We don't know what the day will hold, as it is unpredictable every day. There is no general thrumb to pick up on and ride the wave through the day. Floating through the day would take away from the intricate details, the little ones that are the reminders that God is still here and His hands are all over everything. I want to see that, I don't want to bury myself in mock busyness just to take my attention away from my current reality. I don't want to displace the pain because I know it would inevitably revisit me and show up somewhere else. Pain has a way of doing that. So don't avoid it, stare it in the face. Be bold. Be brave because God is right there with you.
"Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do no be afraid." John 14:27
This is why I trust Him, if He said it, it will be so. Or the peace that surpasses all understanding. He said it, it will be so. I know that I can trust Jesus, trusting Him doesn't make things easier but I know His promises are true. Much of the things that happen, I don't understand but He does. And I trust Him.
We're still here being who God created us to be, exactly where we are supposed to be. Brighter things are on the horizon, we know this but for now, we trust in His timing and trust His direction.
We used to live within the most common option, which was to trust in ourselves for everything. It didn't work out well and we were exhausted. Trusting in God has alleviated much of the stress and mental and emotional exhaustion. This is where I would rather be, this is where I would rather live my life- over here with God.
With trust, comes peace. Reach out to the only one that knows, He will never leave you nor forsake you.
For more insight on this subject matter pick up a copy of: Human, being. Now available online.
www.lulu.com/spotlight/sarastjohn
sarastjohn.wixsite.com/author
God bless.
Monday, March 28, 2016
Indie authors
I know I steal my time, writing... These 5 minutes have been stolen and I'll probably have to write this blog in bits and pieces.
I can't speak for every Indie writer but I can speak for myself.
Someday's it amazes me what I have to do or go through just to sit down in front of the computer and write. Sometime's I have a baby slung over my shoulder or on my lap while I'm editing. Someday's getting a little work done is ten times harder than it should be. At times all I can think about is writing but I just can't quite get to it. It feels like two lovers kept from each other, dying to be together again.
God be praised that my laptop hasn't actually collected dust in a while... That's a sad sight.
Why am I writing this blog today? I just want to tell you on behalf of myself and writers all over the place, Indie authors are wonderful... We're a band of fighting dreamers. Our time is had when the whole family is asleep at 3 am or in the 5 minutes here and 10 minutes there or while caring for their little ones. At least I know that's me... I don't have time carved out in the week but I do know that at some point, I'm going to steal it. I live in the land of cold left-overs and being on call 24 hours a day, I don't necessarily get breaks.
When you purchase an Indie authors work, you purchase a dream they sent out into the world to share with you. You buy their late night; their tears, exhaustion and victory. We are a victorious bunch, really... We're not waiting for the someday or the maybe tomorrow... We've realized that there may not be a someday or a tomorrow. Do it today! My subconscious calls. Do it today! I have to do it today, someday may never come...
As I've been writing this, 45 minutes have already lapsed... I was feeding my youngest a bottle while typing and eating a cold breakfast wrap. Life continues to trek on while my aspirations continue to come at me like waves of thought. I know that I write because I can't NOT write. It's a part of who I am. I know it's that way for others like me, it's like breathing.
Self published and Indie authors aren't always writing just to make a buck. I know I'm not. Sure, it comes with the territory but that's not why I write and publish. I have stories to tell and I hope you enjoy them. They're a part of me... I hope they change you or impact your life someway or another. Or that you understand the lesson in them because there's always a lesson. It's probably one that I had to learn the hard way. I write about the things I know or things that are an inch away from my own personal experiences or topics that intrigue me. If I didn't writing would be flat and boring, there would be no heart in it. As a reader myself, you can tell when the heart is out of it. I'm not the best at my craft but I'm an expert in my stories because they're my dreams spilled out onto pages.
I can't speak on behalf of the many but if you know any Indie authors share their stuff, write reviews for them. That's how we thrive. They're hard working individuals who are probably juggling multiple lives within their one life. They may be packing 36 hours worth of work into a 24 hour period. Thank you for reading this blog, it means a lot to me...
Have a blessed day!
I can't speak for every Indie writer but I can speak for myself.
Someday's it amazes me what I have to do or go through just to sit down in front of the computer and write. Sometime's I have a baby slung over my shoulder or on my lap while I'm editing. Someday's getting a little work done is ten times harder than it should be. At times all I can think about is writing but I just can't quite get to it. It feels like two lovers kept from each other, dying to be together again.
God be praised that my laptop hasn't actually collected dust in a while... That's a sad sight.
Why am I writing this blog today? I just want to tell you on behalf of myself and writers all over the place, Indie authors are wonderful... We're a band of fighting dreamers. Our time is had when the whole family is asleep at 3 am or in the 5 minutes here and 10 minutes there or while caring for their little ones. At least I know that's me... I don't have time carved out in the week but I do know that at some point, I'm going to steal it. I live in the land of cold left-overs and being on call 24 hours a day, I don't necessarily get breaks.
When you purchase an Indie authors work, you purchase a dream they sent out into the world to share with you. You buy their late night; their tears, exhaustion and victory. We are a victorious bunch, really... We're not waiting for the someday or the maybe tomorrow... We've realized that there may not be a someday or a tomorrow. Do it today! My subconscious calls. Do it today! I have to do it today, someday may never come...
As I've been writing this, 45 minutes have already lapsed... I was feeding my youngest a bottle while typing and eating a cold breakfast wrap. Life continues to trek on while my aspirations continue to come at me like waves of thought. I know that I write because I can't NOT write. It's a part of who I am. I know it's that way for others like me, it's like breathing.
Self published and Indie authors aren't always writing just to make a buck. I know I'm not. Sure, it comes with the territory but that's not why I write and publish. I have stories to tell and I hope you enjoy them. They're a part of me... I hope they change you or impact your life someway or another. Or that you understand the lesson in them because there's always a lesson. It's probably one that I had to learn the hard way. I write about the things I know or things that are an inch away from my own personal experiences or topics that intrigue me. If I didn't writing would be flat and boring, there would be no heart in it. As a reader myself, you can tell when the heart is out of it. I'm not the best at my craft but I'm an expert in my stories because they're my dreams spilled out onto pages.
I can't speak on behalf of the many but if you know any Indie authors share their stuff, write reviews for them. That's how we thrive. They're hard working individuals who are probably juggling multiple lives within their one life. They may be packing 36 hours worth of work into a 24 hour period. Thank you for reading this blog, it means a lot to me...
Have a blessed day!
Tuesday, July 29, 2014
Partial Trisomy 9 & 12
It was exciting being pregnant. It seems like it takes an eternity to meet your new baby but it is well worth the wait. Even the labor is worth it, in hind sight of course. While in the midst of it you can think of a hundred things you would rather be doing, that are probably a lot more fun. Bringing Lily into the world was especially painful. Pain I can't even begin to describe. Thinking back on it now I am shocked I even made it through that...
She didn't cry when she was born. The whole room fell silent except for a few suspicious whispers. After what felt like forever a very raspy cry rang throughout the room. What a relief, we couldn't help but cry too. She was nearly as blue as a summer sky. They wrapped her up in blankets and laid her on my chest. Oh what a beautiful little blessing she was. Our little angel, we finally got to meet her...
The doctor and nurses were clued in by a few of Lily's abnormalities right away. Her little pinkies and pointer fingers didn't look right, they were turned in. Both of her feet were different. Also they later told me her hip was hyper-extended upon birth too. They gave her oxygen upon coming out and has to resuscitate her to some degree too. All of this I found out later, rather than while it was going on. Her blood sugar was low too. They took her to the NICU unit. Our first meeting was brief which made me feel very worried and sad.
I didn't get around to going and visiting her until nearly 9 in the morning. She had been born at 4:30 am. I held her close and prayed over her, no one had answers as to why she needed to be under extra special care. My husband had been able to go and be with her for a while and so did my mom. Now I finally got to hold the little baby that I had been carrying in my belly for 9 months. And even though there was something "wrong" with her, she was all together perfect to me. She was beautiful!
The doctors ran various tests on her, they sent out for genetics testing; did x-rays, ultrasounds, blood work. I had prayed that her "abnormalities" her because of how she was positioned in my belly. As the test results continued to come back normal, we were grateful but still miffed as to why the great concern. In the meantime, Lily continued to need sugar water in an IV. Then she spiked a temperature out of no where. So they put her on antibiotics, they also tested her for meningitis and ran more blood work. The thought of them tapping into her spine with a needle made me shutter. She was only a few days old when I was able to go home.
We were all too eager to go home. It was difficult for us to be in the hospital where our privacy was completely compromised. We had no down time to try and sort through how we were feeling. Lily's future felt so up in the air and so did ours. We packed up our things, knowing that we weren't going to be able to take our baby home. It didn't hit me until I was sitting in my wheel chair waiting for my husband to pull the car around. I lost it. I had a diaper bag. Greeting cards that said congratulations, a couple of balloons, the infant seat was in the car. But we had no baby. I had seen other mothers in the elevator leave with their new baby and even congratulated them. I meant it too... Here it was our time to go home and we had no baby. Thankfully I had a wonderful nurse that latched onto me and hugged me until my husband came around with the car. I was a sobbing mess. How could I not see this coming? -That I would handle this so badly. That was one of the emptiest feelings I can ever recall having in my life.
We needed rest. We rested when we could. We spent a lot of time up at the hospital. I couldn't imagine not spending time with Lily. We fed her bottles. We bathed her. We changed diapers. We listened to music and read to her. By her 5th day in the hospital she wasn't able to keep enough oxygen in her blood, so it was decided that she needed some oxygen. The put a canula on her. Yet another blow to the hope that we had that she was going to come home with us soon. They were able to get her off the sugar water, so her IV was removed but now we had a new cord to contend with, the oxygen line. She also had a bout with jaundice. Up until this point we had tried to keep as light hearted as possible. While she was on the billi blanket we had said that she looked like a glow worm. She was terribly cute...
Its now sunday, 6 days in the hospital. We got a phone call wondering what time we were going to be in to see Lily. When we got to the hospital, the resident doctor had wanted to talk with us before he left. So, my husband and I, the doctor, and two nurses went into the family room. Doc was holding a few pieces of paper in his hand. I think my husband and I knew this was it. We were going to get answers today. Lily's genetic testing had come back. The doctor explained everything as thoroughly as possible, at least what he knew about it. Lily was diagnosed with Trisomy 9 partial, a very rare chromosome abnormality. When we got the news it felt like more of a death sentence than anything else. There was no inflection of hope in most of the words that followed. I felt myself go into shock. I felt like i was in the midst of a nightmare, I wanted to wake up so badly but this was it, this was our new reality. The only thing that came to mind at the moment, was what are we supposed to do, as her parents. So I asked the doctor. his reply made a world of a difference to both of us, "just love her" was all he said. That was all he needed to say.
They left us to sort through our feelings for a few minutes. My husband, being the loving man that he is, began to research immediately. He wanted to know what we had on our hands. The internet had information but given the exact mixture or my genes and my husbands genes there is no way to tell how Lily will do. Even now, we just don't know. That Sunday night I went back to the hospital alone to be with Lily. I needed to. My husband needed sometime alone to work through what he was feeling too.
I got to the hospital and washed my hands, I could see she was sleeping. I just wanted to hold her. The nurse and I moved the recliner over to her area so I could recline with her zipped into my hoodie as I had already done so many times before. I tucked her in, laid my head back and prayed. I prayed silently and I prayed out loud. I told God I knew that she was His before she was mine and that I'd like for her to stay with us here on earth if it was His will. But also that if it was't His will for her to stay that I knew He would get us through it. I could feel the tears streaming down my face again, silently. Even though everything about her birth was un usual and difficult, I still had a peace when I was with her. There was something about holding her near to my heart that seemed to make the noise in the world just disappear. The diagnosis disappeared. The sadness; the fear, the anguish I was feeling inside. I felt like my heart was ripped out that day but when I was with Lily, holding her, it went away, at least for a little while. Even though I had been crying, I still wanted the nurse to take a picture of us together. I wanted any moment I had with her caught on camera because we just didn't know. We didn't know if she was going to pull through this. The outlook looked so grim and no one was giving us any reason to believe otherwise. Except for Lily herself.
I felt better about everything after that night. I felt like I had to lay her at the foot of the cross once more to even have the hope of being able to keep her. Many days since that wonderful doctor said "just love her," that has been the words that my heart has uttered too. Lily spent a total of 10 days in the NICU. She had some fantastic nurses that looked after her and cared for her. I am thoroughly convinced they are God's ordained bunch to do what they do. There were a couple that especially touched our heart. Bringing Lily home was no small feat. I had to re-learn CPR. We stayed over night in the hospital again with her to see how we handled her being on oxygen and a pulse ox monitor. It didn't go that well. I slept for maybe a total of 20 minutes all night.My husband didn't sleep much more than I did either. Nervous I guess.
I was terrified at the idea of bringing her home on oxygen but there was no other reason that she need to be in the hospital at this point. We had a long list of follow up appointments to schedule. We had a list of instructions and phone numbers. We really had everything that we needed to care for her at home. Lily had been losing weight and not gaining it back in the hospital, even being on a higher calorie formula. We were also faced with the threat of failure to thrive. My husband and I were convinced we could turn that around upon bringing her home.
It had been painful looking upon her in the hospital hooked up to all of these machines and oxygen and and IV. We felt helpless. We were frustrated and angry even. I just couldn't wrap my head around why a new little person could be so broken. When you purchase something at the store, it's new. It's in the best shape it's going to be in- ever. I can't tell you why this happened to us or why it happens to anyone. It was something that was completely out of our hands. It was something that happened the moment Lily's cells began to divide. There was nothing we could do that could have impacted the outcome. Now, there is so much that we can do to make a difference in the outcome. Not one of us knows how long we're going to be here but we can surely make the best of what time we have. I could choose to live my life angry that this ever happened in the first place. That anger would spill over into my family and the amazing privilege I have in taking care of them. Was this what I would have planned for my life? No... I don't think anyone would. Am I grateful now? Some days are easier than others. I am immensely grateful for Lily, I wouldn't trade her for a different child. She is an absolute miracle and wonder to us. There are a few things I do know. My husband and I were chosen to care for Lily. I will take that as a high honor to be able to care for such an amazing and special little girl like her. The other thing I know is that we have today... Today we are together, today she is alive and thriving. She has already over come so many obstacles. She is already a medical mystery and I pray she continues to blow doctor's away with her progress.
Jesus said that we will have struggles and trouble in this life. He wasn't kidding. I do know that if it weren't for Him and the strength we find in Him we wouldn't make it through most days. He also said not to worry about tomorrow because tomorrow already has enough worry of its own. So, we must make a conscious effort to stay in today.
She didn't cry when she was born. The whole room fell silent except for a few suspicious whispers. After what felt like forever a very raspy cry rang throughout the room. What a relief, we couldn't help but cry too. She was nearly as blue as a summer sky. They wrapped her up in blankets and laid her on my chest. Oh what a beautiful little blessing she was. Our little angel, we finally got to meet her...
The doctor and nurses were clued in by a few of Lily's abnormalities right away. Her little pinkies and pointer fingers didn't look right, they were turned in. Both of her feet were different. Also they later told me her hip was hyper-extended upon birth too. They gave her oxygen upon coming out and has to resuscitate her to some degree too. All of this I found out later, rather than while it was going on. Her blood sugar was low too. They took her to the NICU unit. Our first meeting was brief which made me feel very worried and sad.
I didn't get around to going and visiting her until nearly 9 in the morning. She had been born at 4:30 am. I held her close and prayed over her, no one had answers as to why she needed to be under extra special care. My husband had been able to go and be with her for a while and so did my mom. Now I finally got to hold the little baby that I had been carrying in my belly for 9 months. And even though there was something "wrong" with her, she was all together perfect to me. She was beautiful!
The doctors ran various tests on her, they sent out for genetics testing; did x-rays, ultrasounds, blood work. I had prayed that her "abnormalities" her because of how she was positioned in my belly. As the test results continued to come back normal, we were grateful but still miffed as to why the great concern. In the meantime, Lily continued to need sugar water in an IV. Then she spiked a temperature out of no where. So they put her on antibiotics, they also tested her for meningitis and ran more blood work. The thought of them tapping into her spine with a needle made me shutter. She was only a few days old when I was able to go home.
We were all too eager to go home. It was difficult for us to be in the hospital where our privacy was completely compromised. We had no down time to try and sort through how we were feeling. Lily's future felt so up in the air and so did ours. We packed up our things, knowing that we weren't going to be able to take our baby home. It didn't hit me until I was sitting in my wheel chair waiting for my husband to pull the car around. I lost it. I had a diaper bag. Greeting cards that said congratulations, a couple of balloons, the infant seat was in the car. But we had no baby. I had seen other mothers in the elevator leave with their new baby and even congratulated them. I meant it too... Here it was our time to go home and we had no baby. Thankfully I had a wonderful nurse that latched onto me and hugged me until my husband came around with the car. I was a sobbing mess. How could I not see this coming? -That I would handle this so badly. That was one of the emptiest feelings I can ever recall having in my life.
We needed rest. We rested when we could. We spent a lot of time up at the hospital. I couldn't imagine not spending time with Lily. We fed her bottles. We bathed her. We changed diapers. We listened to music and read to her. By her 5th day in the hospital she wasn't able to keep enough oxygen in her blood, so it was decided that she needed some oxygen. The put a canula on her. Yet another blow to the hope that we had that she was going to come home with us soon. They were able to get her off the sugar water, so her IV was removed but now we had a new cord to contend with, the oxygen line. She also had a bout with jaundice. Up until this point we had tried to keep as light hearted as possible. While she was on the billi blanket we had said that she looked like a glow worm. She was terribly cute...
Its now sunday, 6 days in the hospital. We got a phone call wondering what time we were going to be in to see Lily. When we got to the hospital, the resident doctor had wanted to talk with us before he left. So, my husband and I, the doctor, and two nurses went into the family room. Doc was holding a few pieces of paper in his hand. I think my husband and I knew this was it. We were going to get answers today. Lily's genetic testing had come back. The doctor explained everything as thoroughly as possible, at least what he knew about it. Lily was diagnosed with Trisomy 9 partial, a very rare chromosome abnormality. When we got the news it felt like more of a death sentence than anything else. There was no inflection of hope in most of the words that followed. I felt myself go into shock. I felt like i was in the midst of a nightmare, I wanted to wake up so badly but this was it, this was our new reality. The only thing that came to mind at the moment, was what are we supposed to do, as her parents. So I asked the doctor. his reply made a world of a difference to both of us, "just love her" was all he said. That was all he needed to say.
They left us to sort through our feelings for a few minutes. My husband, being the loving man that he is, began to research immediately. He wanted to know what we had on our hands. The internet had information but given the exact mixture or my genes and my husbands genes there is no way to tell how Lily will do. Even now, we just don't know. That Sunday night I went back to the hospital alone to be with Lily. I needed to. My husband needed sometime alone to work through what he was feeling too.
I got to the hospital and washed my hands, I could see she was sleeping. I just wanted to hold her. The nurse and I moved the recliner over to her area so I could recline with her zipped into my hoodie as I had already done so many times before. I tucked her in, laid my head back and prayed. I prayed silently and I prayed out loud. I told God I knew that she was His before she was mine and that I'd like for her to stay with us here on earth if it was His will. But also that if it was't His will for her to stay that I knew He would get us through it. I could feel the tears streaming down my face again, silently. Even though everything about her birth was un usual and difficult, I still had a peace when I was with her. There was something about holding her near to my heart that seemed to make the noise in the world just disappear. The diagnosis disappeared. The sadness; the fear, the anguish I was feeling inside. I felt like my heart was ripped out that day but when I was with Lily, holding her, it went away, at least for a little while. Even though I had been crying, I still wanted the nurse to take a picture of us together. I wanted any moment I had with her caught on camera because we just didn't know. We didn't know if she was going to pull through this. The outlook looked so grim and no one was giving us any reason to believe otherwise. Except for Lily herself.
I felt better about everything after that night. I felt like I had to lay her at the foot of the cross once more to even have the hope of being able to keep her. Many days since that wonderful doctor said "just love her," that has been the words that my heart has uttered too. Lily spent a total of 10 days in the NICU. She had some fantastic nurses that looked after her and cared for her. I am thoroughly convinced they are God's ordained bunch to do what they do. There were a couple that especially touched our heart. Bringing Lily home was no small feat. I had to re-learn CPR. We stayed over night in the hospital again with her to see how we handled her being on oxygen and a pulse ox monitor. It didn't go that well. I slept for maybe a total of 20 minutes all night.My husband didn't sleep much more than I did either. Nervous I guess.
I was terrified at the idea of bringing her home on oxygen but there was no other reason that she need to be in the hospital at this point. We had a long list of follow up appointments to schedule. We had a list of instructions and phone numbers. We really had everything that we needed to care for her at home. Lily had been losing weight and not gaining it back in the hospital, even being on a higher calorie formula. We were also faced with the threat of failure to thrive. My husband and I were convinced we could turn that around upon bringing her home.
It had been painful looking upon her in the hospital hooked up to all of these machines and oxygen and and IV. We felt helpless. We were frustrated and angry even. I just couldn't wrap my head around why a new little person could be so broken. When you purchase something at the store, it's new. It's in the best shape it's going to be in- ever. I can't tell you why this happened to us or why it happens to anyone. It was something that was completely out of our hands. It was something that happened the moment Lily's cells began to divide. There was nothing we could do that could have impacted the outcome. Now, there is so much that we can do to make a difference in the outcome. Not one of us knows how long we're going to be here but we can surely make the best of what time we have. I could choose to live my life angry that this ever happened in the first place. That anger would spill over into my family and the amazing privilege I have in taking care of them. Was this what I would have planned for my life? No... I don't think anyone would. Am I grateful now? Some days are easier than others. I am immensely grateful for Lily, I wouldn't trade her for a different child. She is an absolute miracle and wonder to us. There are a few things I do know. My husband and I were chosen to care for Lily. I will take that as a high honor to be able to care for such an amazing and special little girl like her. The other thing I know is that we have today... Today we are together, today she is alive and thriving. She has already over come so many obstacles. She is already a medical mystery and I pray she continues to blow doctor's away with her progress.
Jesus said that we will have struggles and trouble in this life. He wasn't kidding. I do know that if it weren't for Him and the strength we find in Him we wouldn't make it through most days. He also said not to worry about tomorrow because tomorrow already has enough worry of its own. So, we must make a conscious effort to stay in today.
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