I needed a place to go today.

I needed a place to go today, not a place to air all my grievances but a place where I could just feel safe to share what is on my heart and on my mind today. Somewhere, someone would understand... So, naturally I turn to the Holy Spirit, who can decipher even my deep signs and groans.

I know I have not written here in a very long time but it has actually been a really difficult year, plagued with many lengthy hospital visits for Cookiepants. She is home, we got home again this past Saturday. We had such high hopes for this last visit, a surgery that in theory would have alleviatedI some of her digestive discomfort. But here we are staring into the face of the same beast that has troubled her since birth, manifesting itself as uncontrollable screaming and punching and being generally inconsolable.

I cry out to the Holy Spirit for His help and His guidance every single day. Whom else should I cry out to but my Father? He is filled with all knowledge and wisdom and is the only one who has what I need. Whether it be comfort or wisdom, He has it. And honestly, I just like spending time with Him. He gets me.

Being a special needs parent has not gotten easier. You just get to a place where you are pushed beyond your, "never will I ever's" and you fix your messy bun, refill your tea mug with the strongest tea you can import and you deal. You stare into the face of all the things you never wanted to do, all of the things no parent ever dreams about doing. In our case, many days have been an especially tailored nightmare. We do our best every single day but some days it just isn't enough.

While we were in the hospital, I prayed and asked God what He wanted me to do. The Holy Spirit whispered, "Sara, you have the ability to bring a bit of heaven with you where ever you go." So I took Him at His word and viewed the hospital as not just somewhere people go to get better (hopefully) but as a Holy Spirit playground. I saw opportunities all over the place to pray for others and lay hands on people in prayer. Back in July when there was the chance that we could have lost Lily, I wasn't going to let her very poor condition stop me from being hopeful for her and for others. I cheered when I saw children going home, knowing my child was going to be there for at least another 10 days. I celebrated the work I saw God doing all over that place. I celebrated when Lily broke through her poor diagnosis and began getting better again. I celebrated when her partial blockage was discovered in her stomach because at least we knew about one more missing piece to the puzzle.

There continues to be so much that we just don't know. This week, in spite of being fed into her intestines, she is still cranky and angry. It would be so easy for me to feel sorry for us and feel defeated but I am just not going to. We have come too far and God has given us too many promises in His Word to neglect even a single one, though things look quite grim today. I don't know what is wrong, I do not know how to fix it but I know that He does.

We are tired. This has been an epic-ally long battle where the fires continue to rage on. I am only one woman but fortunately, I have an entire army standing behind me, because my Father tells me so. No matter how this all shakes out, we will not be defeated, we will not have lost and I will not stop serving my God.

For now, we will hold tight to His promises because they are quite literally all that we have. We have done everything medically that there has been offered to do. Special needs parenting often translates to waiting, a lot. And so we wait. We wait for God to carry out His promises, for the things decreed over our lives to come to fruition, for the prophesies to be made manifest. We await the move of God, because nothing and no one can stop the will of God for our lives, not even the enemy of our souls. God's will is ALWAYS; wholeness, wellness and peace for our body, mind and soul. Nothing less. What I see before me is irrelevant. What God says is what is the truth. That is all I need to know. And that is where I will stay.